In this Comment piece, Martin Head, Programme Director at Corsham Institute argues that as the integration of domestic devices grows, the data gleaned from our conversations at home and our interactions with the Internet of Things (IoT) has to be subject to a far more developed and robust culture around data ethics.
In the final comment piece for the Obserrvatory's Data Fortnight, Sue Lewis, Chair of the Financial Service Consumer Panel, presents the findings of their recent research on how consumers consent to sharing financial data with a third party. She also provides recommendations for government and businesses to avoid consumer harm.
In this comment piece for the Observatory's Data Fortnight, Sonali Parekh, the Federation of Small Businesses’ Policy Director, discusses the impact of GDPR on their members and the steps the Information Commissioner might continue to take to support small businesses through this change in regulation.
The requirements for businesses under GDPR have been set out for two years. So why the last-minute panic? In this comment piece, Corsham Institute’s Director of Policy and Advocacy, Maeve Walsh, looks at the preparations that businesses should by now have completed to comply with GDPR and the incentives for getting it right – for all of us.
Anatomy Health and Health XL spoke to experts across data, IT, security and life sciences to understand the potential impact of GDPR on innovation on providers in the health and care sector. Ahead of the publication of their findings, Shai Blackwell, Managing Director of Anatomy Health, discusses why GDPR is an opportunity for the healthcare industry to put patient rights front and centre.
With the imminent introduction of the GDPR, organisations using personal data will need to be much clearer and demonstrate better accountability over how and why they use data, and how they protect it. This is particularly important in healthcare, which is underpinned by the relationship of trust and confidentiality between clinicians and patients. At the same time, it is increasingly recognised that better linking and access to patient data could lead to enormous benefits for patients and for the health service. In this blog, Natalie Banner explores some of the core relevant principles of GDPR and what kinds of questions need to be answered to improve transparency over the use of health data.
In this comment piece, as part of the Observatory’s Data Fortnight, Simon Burall from Involve discusses the balance between the public benefits and potential risks of data sharing. He suggests three questions that public service providers should ask before sharing data and a framework to mitigate those risks.
In this Comment piece, as part of the Observatory's Data Fortnight, Alan Mitchell, the Chairman of Mydex, argues that despite scandals like Cambridge Analytica, the biggest problem - and opportunity - in today’s personal data landscape doesn’t lie in things that are happening but shouldn’t. It lies in things that aren’t happening but should: like individuals being empowered with their own data.
Data is no longer just the outcome of scientific research or administrative functions of government but is now created as a bi-product of every person’s interactions with the internet, infrastructures, institutions, news media, supermarkets, banks, the built environment and so on. Dr Hannah Knox makes the case for the crucial role that anthropology can play in wading through this data saturated landscape.